Vis-à-vis, Spring 1996, Volume 13, Number 3: A National Newsletter on Family Violence
Canadian Council on Social Development

Meeting the Practical Needs of Women Who Have HIV/AIDS

by Christine Villeneuve

I have heard so many women say, "If it was but for me, I'd commit suicide, but my child needs me." Despair in women with HIV is fully justified; responsibilities and stress skyrocket when women find out that they or their children or both are HIV+. Many of them are single moms because their partner has died of AIDS or, more often, because the partner has left them. Living with HIV/AIDS is a challenging struggle for survival.

Like most women, women who are HIV+ put their own needs second to the needs of their children. After a child is born to an HIV+ woman, it can be up to 18 months before tests confirm whether the child has the virus. (All infants of HIV+ mothers will test positive at birth because they carry their mothers' HIV antibodies.) Meetings with doctors at hospitals, doctors' offices and medical clinics about the health of their HIV+ or potentially HIV+ child leaves little time and energy for these women to do the same for themselves.

HIV can be transmitted from mother to child during pregnancy, at birth or during breast- feeding. Statistics vary, but about one baby in five born to an HIV+ women in Canada is infected with the virus. One study has shown that the chance of passing HIV to the baby can be reduced if the HIV+ woman takes antiviral medication during pregnancy. This medication, formerly known as AZT, requires an adjustment period from a few days to a few weeks, as women experience tremendous physical and emotional reactions to the drug.

In the Ottawa-Carleton area since February 1994, women with HIV/AIDS have had a community service tailor-made to meet their needs. The idea of implementing a service for the previously overlooked female seropositive clientele was born at the Centre Medical Ste-Anne. Thanks to a team of volunteers, trained and supervised by professionals, this clientele benefits from a range of practical social services. Women can receive accompaniment or transport to the many doctor's appointments, baby-sitting services during doctor's appointments (and while women are adjusting to new medications) and many other services that promote accessibility to and maintenance of a course of medication.

Our experience has shown that women, especially immigrant women, who are HIV+ are very concerned about maintaining their confidentiality. The reasons for this are valid fear of violence or being stigmatized, shame and concern for the safety and well-being of their children. This need for confidentiality is a huge barrier to group work with HIV+ women, but we are pleased that we are able to provide practical assistance and a supportive environment to these women and children who so desperately need them.


Christine Villeneuve works at the Centre Medical Ste-Anne. She can be reached at:
500 Old St. Patrick
Ottawa, ON, K1N 9G4
Tel: (613) 789-1552, fax: 789-0659

The URL for this document is: http://www.ccsd.ca/v_pract.html

Email CCSD or Vis-à-vis | CCSD Home Page| Table of Contents (current issue)